BigData@CSAIL Data Privacy Series: Health Data Governance in OECD Countries – Variability & the Growing Need for INTL Consensus

Speaker: Jillian Odekirk, Senior Analyst , Organization for Economic Cooperation and Development (OECD)

Date: Wednesday, December 07, 2016

Time: 11:00 AM to 12:00 PM Note: all times are in the Eastern Time Zone

Public: Yes

Location: WebEx Forum

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Contact: Valerie Stephens,

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Reminder Subject: TALK: BigData@CSAIL Data Privacy Series: To be announced

Co-sponsored by MIT Communications Futures Program

Privacy has become well-recognized as an important and challenging problem, not only for academics, but for private industry, regulators, and governments. One of the challenges we face with respect to privacy is to understand how effective privacy approaches and technologies are at contributing to overall privacy. We have invited speakers from all of these areas to talk not only about their work on various approaches to dealing with “the privacy problem”, but also to discuss their views and techniques for evaluating their approaches.

Health data are necessary to improve the quality, safety and patient-centeredness of health care services and to support scientific innovation, the discovery and evaluation of new treatments and to redesign and evaluate new models of health service delivery. Often the data are held in silos by the organisations that have collected them and by governmental authorities, such as health ministries and statistical agencies. However, when such data are linked and analysed, then an exponential gain in information value can be attained to serve health related public interests. Differences in approaches to the protection of patient privacy and health data security have resulted in a high variability across OECD countries in health data accessibility and use for health and health care monitoring and research. This presentation will describe the state of health data development, use and governance among OECD countries, including new efforts to develop an international consensus about the framework conditions within which health data can be appropriately governed to enable health data processing to take place both domestically and trans-nationally.

Jillian Oderkirk is a Senior Economist representing the Organisation for Economic Co-operation and Development (OECD) Health Division and consulting on a project to develop an OECD Recommendation on Health Data Governance. Jillian leads projects on developing health information infrastructure including the development of electronic health record systems and the use of personal health data for health system performance monitoring and research. Prior to joining the OECD, Jillian had a long career with Statistics Canada in Ottawa, Canada and was the Director of the Health Analysis Division at Statistics Canada from 2006 to 2011. Jillian has a Master's Degree in economics from McMaster University, Hamilton, Canada.

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Created by Valerie Stephens Email at Monday, November 14, 2016 at 2:22 PM.